Being diagnosed with or treated for a brain aneurysm is a life-changing experience. Many survivors and their loved ones benefit from ongoing support through attendance at monthly support groups.
The Brain Aneurysm Foundation started the first support group in Boston in 1992. Since then, the foundation has worked with healthcare providers across the United States and Canada to establish more than 60 support groups.
Support groups, which are typically held monthly and led by healthcare professionals, help by:
- Letting survivors and loved ones know they are not alone and that others understand what they are going through.
- Providing a confidential setting where members can share emotions, experiences, and challenges with others in similar circumstances.
- Providing a forum for solving problems and sharing ideas.
- Providing reliable health information, reasonable expectations for recovery, and resources.
- Enabling healthcare professionals to educate patients — and for patients to educate healthcare professionals — about their experiences.
- Helping patients find appropriate resources.Letting survivors and loved ones know they are not alone and that others understand what they are going through.
Click here for a list of Brain Aneurysm Foundation-approved support groups. If you are a healthcare professional interested in organizing a support group in your area, contact the Brain Aneurysm Foundation, which will assist you.
The Brain Aneurysm Foundation’s growing online brain aneurysm support community provides a forum for survivors and loved ones affected by brain aneurysms to find support and share information, joys, and concerns with others from the comfort and privacy of their homes. The forum section allows members to ask questions or start a discussion about topics of interest to survivors, caretakers, and those who have lost a loved one to a brain aneurysm. The blog section allows members to share their stories, concerns, and photos, and find comfort from others in the community. Some members have formed their own groups: “Living with an Aneurysm” and “Aneurysm and Migraines” are two examples.
Brain aneurysm survivors can face a number of challenges: as mentioned previously, difficulties with anxiety, depression, and lack of confidence and self-esteem are not uncommon. While some survivors return to their previous level of functioning, others may be adapting to the